When they first discover their child is suffering from a genetic condition many parents turn to the internet for knowledge and to connect with families going through the same experience.
Our Mission
Our mission is to improve the lives of those affected by CHAMP1 disorders through clinical research, effective treatments, public awareness, early detection, family support and patient advocacy.
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Via Trattati di Roma, 20 – 46023 Gonzaga (MN) – Italy
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